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Until I Say Good-Bye

My Year of Living with Joy

ebook
1 of 1 copy available
1 of 1 copy available
Moving and inspirational reflections on life from one woman, diagnosed with ALS, making the most of her final days with family and friends.
In June 2011, award–winning journalist Susan Spencer-Wendel was diagnosed with amyotrophic lateral sclerosis (ALS), more commonly known as Lou Gehrig's disease, a disease that systematically destroys nerves that power muscles. Forty-five years old and a mother of three, Susan walks with braces and is losing her ability to speak. Unable to stop the rapid decline of her body, she refuses to let her life stop before its time. Since her diagnosis, Susan makes sure every day counts, is more present than ever in her daily life, and ready to share her strength, determination, and spirit.
Until I Say Goodbye is a truly magical story and so much more than one woman's "bucket list." It's a celebration of life, a look into the face of death, and the effort we must make to show the people that we love and care about how very much they mean to us.
"Touching and brutally honest." —USA Today

"Susan Spencer-Wendel had to face the question, 'What would you do if you had a year to live?' This profound, tender, and often funny account of her experiences will remind readers of what really matters most: love." —New York Times bestselling author Gretchen Rubin
"This heartbreaking and heartwarming good-bye will make you laugh as much as it makes you cry. Susan Spencer-Wendel's determination to find the joy in life after having been dealt the ALS card is both inspirational and enlightening." —New York Times bestselling author Cokie Roberts
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    • Publisher's Weekly

      February 18, 2013
      Journalist Spencer-Wendel discovered she was ill when her left hand suddenly became withered. As she struggles to come to terms with knowing something is wrongânot wanting to find out, then not fully believing the doctor's ALS diagnosisâshe writes with courage and strength. When she gets the news, the 40-something author is in her prime, blessed with a great reporter job at the Palm Beach Post and loving family. Using benefits from an insurance policy, she quits her job and decides to take trips with her family and friends, so that she can have all of the amazing experiences she's put off and create lasting memories. She goes to the final space shuttle launch with her youngest son, having never been to Cape Canaveral, even though her home is only hours away. A few months later, joined by her best friend, she sees the aurora borealis in the Yukon. It's there that Spencer-Wendel's philosophy plays out, as it does many times more, as she briefly caught the lights before tripping and missing the rest. She is appreciative and grateful for those few seconds and banishes regrets. There are certainly moments of heartbreak that she doesn't shy away from, such as when she goes shopping for bridal dresses with her teenaged daughter, knowing she'll miss any future wedding. Spencer-Wendel's life will sadly be cut short, but in writing her story, she shows her family and friends how to go on, choosing happiness and love over fear.

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  • English

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